Directory of Internet Resources Concerning Disabilities

 

NOTE: Georgia’s Babies Can’t Wait/Project SCEIs does not endorse or support any individual program and is not responsible for the content found at any particular site. These resources are for informational purposes only. Families who do not have internet access at home can often use the internet at libraries. Check with your local library for internet access.

 

Assistive Technology

www.gatfl.org

Tools for Life  

Website explains Tools for Life services. (Services include equipment loan library, computer recycling program, assistive technology scholarships, assistive technology training through hands-on assistive technology demonstrations and educational workshops, Touch the Future Expo, and the Microsoft Life Long Learning lab.) Site also links to other disability websites and online technology publications. Website is available in Spanish


www.assistivetech.net
Georgia Tech Center for Assistive Technology & Environmental Access (CATEA)
Sponsored by the National Institute for Disability and Rehabilitation Research (NIDRR), this site includes as assistive technology search which accesses a database of thousands of disability-related products and activities to help you find products related to your need. Site also includes links to disability-related discussion group and various information topics.

www.gtradeonline.org
gTRADE – Georgia’s Assistive Technology Equipment Exchange Program

Sponsored by Tools for Life and Georgia Tech, gTRADE encourages members to offer assistive technology devices and information for sale or purchase to others who may benefit from using technology unneeded or discarded by others. This site includes a membership application form. gTRADE functions like a classified advertisement in your local newspaper.

 

www.lekotekga.org

Lekotek of Georgia 

The Lekotek website includes information about Lekotek services including play sessions, support groups, special events, and products available for loan. Site also contains resource links, a calendar of events, past newsletters, and frequently asked questions about Lekotek.

 

www.ablenetinc.com    

AbleNet Inc. 

Website shows products that can be ordered, ideas for teachers using assistive technology in the classroom, and technical support for their products.

 

www.accessibilityproducts.com

Accessibility Products, Inc.

Company offers a wide range of products for purchase such as walking aids, bathroom safety, wheelchairs, and other aids for daily living.

 

 

www.blvd.com

The Boulevard Disability Resource Center

Website provides a Disability Resource Center, which is a directory of products and
services for the physically challenged, elderly, caregivers and healthcare professionals. Click on the category you are interested in and the website will give you a list of providers. Click on the provider name to go to their website.

 

www.techable.org

Tech-Able Inc.

Tech-Able provides information and access to assistive technology devices through its Lending Library, Demonstrations, Training Classes and Referral system. Browse the contents of the library online. Site also has links to various manufacturers and disability-related organizations.

 

www.assistivetech.com 

Assistive Technology, Inc.

Company offers computer-related products that assist with learning and communication.

 

www.communicationaids.com

Crestwood Company

Company sells communication aids for children and adults.

 

www.enablingdevices.com 

Enabling Devices/Toys for Special Children

Company sells learning and assistive devices to help people with disabling conditions.

 

www.rehabtool.com

RehabTool.com

This company sells assistive and adaptive technology products. They specialize in computer adaptations and build custom software. Website also offers a Product Search and Referral feature.

www.zygo-usa.com

ZYGO Industries, Inc.

ZYGO is a manufacturer of various communication devices, environmental controls and other technology for persons with disabilities.

 

Attention-Deficit/Attention-Deficit/Hyperactivity Disorder (ADD/ADHD)
www.chadd.org
Children and Adults with Attention-Deficit//Hyperactivity Disorder (CHADD)

Website includes information about the organization CHADD as well as frequently asked questions, fact sheets, and research about Attention-Deficit and Hyperactivity Disorder. Additional information includes legal rights, finding local support groups, and public policy on a variety of topics including education. It is also translated in Spanish.

 

www.add.org

Attention Deficit Disorder (ADD) Association

Website contains general information about ADD, ADD research and treatment, support group information, and topics concerning work and family life. Information is available for persons of all ages with ADD. A Kids pages and Teen page is also available.

This site is packed with articles, personal stories, interviews with AD/HD professionals, book reviews, and links to other AD/HD-related sites that provide information which may be helpful.

 

www.borntoexplore.org 

Born to Explore: The Other Side of ADD

Site contains a variety of articles related to Attention-Deficit Disorder. Also includes book reviews, links, and a discussion board.


Autism
www.autism-society.org
Autism Society of America

Site includes information on the Autism Society and national autism issues, downloadable information packages, and a resources list for each state.

www.autism.org
Center for the Study of Autism

Website provides educational and research information on various topics related to or about autism. Topics include autism issues, interventions, Temple Grandin articles, siblings, and exclusive interviews with experts. Site also contains information about subgroups and related disorders of autism and links to autism related resources on the internet. Available in Chinese, Italian, Japanese, Korean, and Spanish.

http://groups.yahoo.com/group/Autism-Georgia/

Autism-Georgia Listserv

The Autism-Georgia Listserv provides a means for parents and professionals to network about autism issues in Georgia. Topics include: Local medical studies and participation; Institutions and schools offering treatment and education for autistic children and adults; OT, PT and speech professionals who would like to offer their services and network on autism-related issues; Help wanted ads for locating ABA program tutors/therapists; Parent support resources; and Nutrition, biomedical and educational treatments. The list is moderated but open to anyone interested in networking to find local autism resources.

 

www.isn.net/~jypsy/
Ooops…Wrong Planet! Syndrome.
Maintained by a family with three members who have autism (including one parent), this site shares one family’s personal experience. It also contains hundreds of links to Autism Spectrum and related disorders. Links categories include: The Basics; Autism Spectrum and Related Disorders; General Resources; Organizations, Parent Groups, Service Providers; Making Connections; The Pen Pal Registry; Conferences; Databases; Foreign Language Resources; The Experts; Autistic Culture; Sibling Issues; Treatments & Therapies & Theories; The Sensory Side; Communication Resources, Education Resources; Work/Job Resources; Social Skills and Behavior Resources; Technology and Software; Advocacy; Legal Matters; and more.

 

 

www.nap.edu/catalog/10017.html

National Academy Press Catalog: Educating Children with Autism

Read this book online for free Educating Children with Autism outlines an interdisciplinary approach to education for children with autism. The book explores what makes education effective for the child with autism and identifies specific characteristics of programs that work. Recommendations are offered for choosing educational content and strategies, introducing interaction with other children, and other key areas.

 

Cerebral Palsy

www.ucp.org 

United Cerebral Palsy of Georgia, Inc.

Site includes information about United Cerebral Palsy and information for families with cerebral palsy. Family information topics include: education, housing, leisure & sports, employment, parenting & families (Caregiving Basics and Caregiving Guidelines), transportation, health & wellness, products & services, and travel. Each topic includes general information and up-to-date articles and news.

 

Deaf/Hard of Hearing/Deaf-Blind

http://education.gsu.edu/unhsi/  

Georgia’s Universal Newborn Hearing Screening and Intervention Initiative

Site includes information about Universal Newborn Hearing Screening. It also has links related to hearing loss/deafness and a hearing loss Power Point presentation.

 

http://education.gsu.edu/georgiadeafblindproj/

Georgia Deafblind Project

The Georgia Deafblind Project provides technical assistance to children and youth with deafblindness from birth through 21 years of age and to their families and service providers. Website provides definition of deafblindess, a description of services, contact information, and printable handouts that discuss deafblindness.

 

www.gapines.net

Georgia Parent Infant Network for Educational Services (PINES)

Georgia PINES is a statewide early intervention program, begun in 1980, for families of children birth to five years of age with a diagnosed hearing impairment and/or a visual impairment. Website includes program information, parent information, and links to online resources. Referrals can also be made on the website.

 

Developmental Disabilities

www.ga-ddcouncil.org/

Governor's Council on Developmental Disabilities
This site contains information about the Governor’s Council on Developmental Disabilities and its programs. Also contains information on current public policy issues and advocacy links to government sites, disability resource sites, non-profits, and listserv groups. A question and answer site is also available. Bulletin boards are included for needed resources and meeting notices.

 

www.uap.uga.edu

Institute on Human Development and Disability/University of Georgia

This site is a resource for educators, students, professionals, service providers, and people with disabilities. It includes links to collaborative agencies and resource products for viewing and reading. IHDD is the Center for Excellence in Developmental Disabilities Education, Research, and Service for the state of Georgia.

 

www.aadd.org  

Atlanta Alliance on Developmental Disabilities

Website defines developmental disabilities and offers information on family support in Georgia, public policy and legislation, recreation, and parent education. It also offers a newsletter and a resource and referral feature.

 

Down syndrome

 

http://www.ndss.org

The National Down Syndrome Society

NDSS works to increase public awareness about Down syndrome, discover its underlying causes through research, education and advocacy, and to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. 

 

http://www.ndsccenter.org/ 

National Down Syndrome Congress It is the mission of the National Down Syndrome Congress to be the national advocacy organization for Down syndrome and to provide leadership in all areas of concern related to persons with Down syndrome. NDSC functions as a major source of support and empowerment to persons with Down syndrome and their families.

www.down-syndrome-atlanta.org/
Down Syndrome Association of Atlanta Site includes general information on Down syndrome, links to resources in Georgia, support groups around the state, frequently asked questions, and local events and activities of the Down Syndrome Association.

Early Childhood/Early Intervention

www.ph.dhr.state.ga.us/programs/bcw/index.shtml

Babies Can’t Wait

Site includes information about eligibility requirements, services, how to contact your local program, and the Part C Early Intervention Self-Assessment Report.

 

http://education.gsu.edu/sceis
Project Skilled Credentialed Early Interventionists (SCEIs)

Project SCEIs web page provides information on early intervention, training, and educational opportunities. Also includes information on Babies Can’t Wait Early Intervention Program Parent Educators. Available in Spanish.

www.zerotothree.org/
Zero to Three: National Center on Infants, Toddlers & Families

Parent information includes brain development, early literacy, childcare, special needs, and more. Also includes information for early childhood professionals and an online bookstore.

www.familyvillage.wisc.edu/index.htmlx
Family Village: A Global Community of Disability-Related Resources

The Family Village integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more! Early Intervention Resources are found at http://www.familyvillage.wisc.edu/education/ei.html.

 

Emotional/Behavioral Disorders/Attachment Disorders
www.bpkids.org

Child & Adolescent Bipolar Foundation

Site has information and resources related to Bipolar Disorder. Topics include early onset, education, family interviews, assessments, and scientific and professional journals. Message boards, chat rooms, and support groups help families connect. Site also includes a bookstore.

 

www.attachmentcenter.org
The Attachment Center at Evergreen

This site provides information about attachment disorder through articles, studies, bibliographies, resources, books for purchase, and frequently asked questions about attachment disorder and The Attachment Center at Evergreen.


www.pnpic.org
Parent Network for the Post-Institutionalized Child

Site deals with the needs of children adopted from hospitals, orphanages, and institutions from around the world. Site includes copies of past newsletters, book information, and publications for downloading. Site also includes resources links and information about problems adopted children

from other countries may have.

 

Epilepsy

www.epilepsyga.org

Epilepsy Foundation of Georgia

Services include information and education about epilepsy, support of research, and providing services to those with epilepsy. Site includes epilepsy centers in Georgia, employment information, ten most frequently asked questions about epilepsy, first aid for seizures, epilepsy-related links, and epilepsy support groups in Georgia.

 

Estate Planning

http://nichcy.org/pubs/newsdig/nd18.htm

NICHCY: News Digests - Estate Planning #ND18

Online publication provides an overview of the process by which families can create specialized wills and trusts to provide for their children in the future. Written by expert estate planners, this publication can help inform parents about how to develop a special needs will, how to protect their child's eligibility for government benefits, and how to ensure that future caregivers have an in-depth understanding of the person with a disability. This issue is tailored for those planning for the needs of adult sons and daughters with disabilities.

 

www.ican.com/channels/money/manage_finances/estate_planning.cfm

DisabilityWorld: Estate Planning

Article discusses how to begin a plan that includes preparing a Letter of Intent, will and Special Needs Trust; establishing financial need; and addressing guardianship and government benefit issues.

 

www.metlife.com/Applications/Corporate/WPS/CDA/PageGenerator/0,1674,P1265,00.html

MetLife: Planning for Your Special Needs Child

Discusses estate planning for your child with special needs.

 

Individualized Family Service Plan (IFSP)/Individualized Education Program (IEP)

www.answers4families.org/ifspweb/ 

IFSP Web – Individual Family Service Plan

This comprehensive online tutorial was designed to help Nebraska parents through the IFSP process but has valuable information for parents in any state.

 

http://nncf.unl.edu/nncf.go.ifsp.html

Answers4Families:Preparing for the IFSP 

Though this site is written for professionals, it has good information for parents who are preparing for IFSPs. Site shares what happens before the IFSP, the parent’s role in the IFSP, and ideas to help you get ready for the meeting.

 

www.ed.gov/databases/ERIC_Digests/ed449634.html

Educational Resource Information Center (ERIC): The Individualized Family Service Plan (ERIC Digest #E605)

Information includes the IDEA mandated parts of an IFSP, how the IFSP differs from the IEP, steps that lead to effective IFSPs, and evaluations of progress.

 

www.ed.gov/databases/ERIC_Digests/ed419326.html

Rights and Responsibilities of Parents of Children with Disabilities. ERIC Digest #E567

Article explains parental rights and responsibilities in the special education process. Also describes what parent’s can offer during the IFSP or IEP process and available resources.

 

http://home.inreach.com/torsi/IFSPIEP.html

IFSPs and IEPs: What do all those letters mean? 

Site presents a brief overview of the terms IFSP and IEP. 

 

http://ici2.umn.edu/pcplanning/training/jan00itv/

University of South Carolina Interactive Television session: Facilitating an Individualized Family Service Plan (IFSP)

This is an online slide show of a presentation presented by the University of South Carolina.
 
www.uwm.edu/Dept/early-childhood/IFSP/ (slides)

http://ici2.umn.edu/pcplanning/training/jan00itv/tsld001.htm (text only)
University of Wisconsin-Milwaukee: Family Centered Care and the IFSP

This is an online slide show with general information about the IFSP.

 

www.pitt.edu/~uclid/faq6.htm

The UCLID Center: What are my rights and responsibilities in the creation of an IFSP and an IEP?

Contents includes a descriptions of an IFSP and IEP, contents of IFSPs and IEPS, parent rights and team responsibilities, and IEP timelines.

 

http://cdd.unm.edu/ec/ecn/ifsp-decision.html

Early Childhood Network: IFSP Decision-Making Process

Site includes information about family-directed IFSP decision-making. Also includes an IFSP Decision-Making Process Outline, decision-making forms, and a case study along with the child’s resulting IFSP plan.

 

Federal Agencies

www.nichcy.org/
National Information Center for Children & Youth with Disabilities (NICHCY)

NICHCY makes available a wide variety of publications, including fact sheets on specific disabilities, parent guides, bibliographies, and their issue papers, "News Digest", "Transition Summary", database of sources with national resource lists and state resource sheets. Information available in Spanish.


www.nih.gov/
National Institutes of Health
Website includes health publications & fact sheets, health hotlines, and an A-Z health topic index. Also includes information on grants and funding, scientific resources, and links to federal health agencies. Also available in Spanish.

 

www.lib.lsu.edu/gov/fedgov.html
Louisiana State University Libraries Federal Agency Directory

Site provides links to federal agencies in both hierarchal and alphabetical listings. Also organizes federal agencies by the following: Boards, Commissions, and Committees; Executive; Independent; Judicial; Legislative; and Quasi-Official.

Federal Interagency Coordinating Council

www.fed-icc.org
Site shares mission and activities of the Federal Interagency Coordinating Council (FICC). Also includes a Links page with links to federal agencies represented on the FICC, state Interagency Coordinating Councils, and links useful for families of children with disabilities.

 

Fragile X Syndrome
http://www.fraxa.org/

Fraxa Research Foundation – Fragile X

Site includes general information about Fragile X, research news, and the Fraxa Research Foundation. Also provides links to Fragile X resources including the Fragile X Listserv, online information about Fragile X, and Fragile X Organizations Around the World.

 

www.fragilex.org

National Fragile X Foundation

Site includes detailed information about Fragile X. It also addresses topics such as testing, intervention, and education. This site also has links for doctors and a Spanish brochure. Information about the Foundation, and a list of helpful resources that include books, videos, and audiotapes are also included as well as links to support groups.

 

http://www.fpg.unc.edu/highlight_Detail.cfm?ID=196

Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill

Research and education activities focus on child development and health, especially factors that may put children at risk for developmental problems. Website highlights results of research: Discovering fragile X syndrome: family experiences and perceptions.

 

Funding

www.care4gakids.org/

The Foundation for Medically Fragile Children

The primary mission of the Foundation is to advocate and provide funds for the unmet healthcare needs of medically fragile children. The foundation is a 501(C)(3) nonprofit organization and actively helps Georgia children receive the medical care they need.
Site includes information about the Foundation, becoming a member, and newsletter.
 

www.nls.org/specedat.htm

Funding of Assistive Technology: The Public School's Special Education System as a Funding Source

Site overviews the Individuals with Disabilities Education Act and assistive technology requirements under IDEA. It also addresses maximizing a student’s potential and the legal of obligations of schools and how to enforce the rights of the students needing assistive technology.

 

Inclusion 

www.kidstogether.org

Kids Together. Inc.

Site includes a variety of information related inclusion including: People 1st language, links to inclusion sites, rights in special education and regular education, IEP Planning, assistive technology, early intervention, and more.

 

www.inclusion.com/

Inclusion Press
Site includes books and videos on inclusion and person-centered planning.

 

www.uni.edu/coe/inclusion/index.html 

Inclusive Education

Site contains the philosophy and legal requirements of inclusion. It also addresses teacher competencies and teaching strategies, decision-making, preparing for inclusion, inclusion resources and other issues related to inclusion.

 

www.circleofinclusion.org  

Circles of Inclusion

The Circle of Inclusion Web Site is for early childhood service providers and families of young children. This web site offers demonstrations of and information about the practices of inclusive educational programs for children from birth through age eight. Site includes downloadable materials, interactive lessons, information about teaching methods and practices, and links for parents.

 

Insurance

www.peachcare.org/dehome.asp
PeachCare for Kids

Provides free or low-cost health insurance to Georgia’s children. Web site includes information about PeachCare including eligibility, benefits, and cost. An online application form is included. Available in Spanish.

 

Internet

www.irsc.org/
Internet Resources for Special Children (IRSC)

IRSC provides information to those who care for, support, and provide services to individuals with special needs. Internet links are listed for a variety of disability-related categories. The web site provides Online Communities where parents or providers can ask questions and meet others who may have the same questions or experiences. It also contains recent news articles and books.

 

www.disabilityresources.org/
Disability Resources on the Internet

This site has information on finding, evaluating, and determining the value of online resources. It also offers a guide to the national and state agencies and organizations for people with disabilities and how to find them. Use the site to find your home state in The DRM Regional Resource Directory and discover resources and services in your area. Site also includes The DRM WebWatcher, a subject guide to disability resources on the internet, and The DRM Regional Resource Directory, a guide to state and local agencies and organizations. Also explains common acronyms and their meanings

 

www.disabilityworld.org
Disability World

Disability World is a bimonthly web magazine of international disability news and views. It also includes resources and book reviews. Available in Spanish.

 

www.halftheplanet.com

Half the Planet

Online exchange that "enables the disabled to connect with others and breaks down the barriers that exist in the real world."  It includes a resource center, advice on travel with
disabilities, and lifestyle, health, and medical news.  It has links to merchants
with products for the disabled.

 

Medicaid/Deeming Waiver

www.communityhealth.state.ga.us/
Georgia Department of Community Health

Site includes information about Medicaid including Medicaid Provider Manuals and a list of covered services, PeachCare, and a pharmacy locator. Online publications include A Georgia Advocate’s Guide to Health Care, Understanding Medicaid, and Home and Community Services


www.aspe.hhs.gov/daltcp/reports/primerpt.htm
Understanding Medicaid Home and Community Services: A Primer

Article helps explain how the Medicaid program can be used to access a broad range of services and supports for people of all ages with disabilities, and encourages the support of persons with disabilities in the community. Includes a listing of Medicaid-related acronyms.


www.hcfa.gov/
Centers for Medicare and Medicaid Services (formerly HCFA)

Site includes general information for consumers and beneficiaries and professional and technical information for medical professionals for both Medicare and Medicaid. Also includes information about State Children’s Health Insurance Program and the Health Insurance Portability and Accountability Act of 1996.

 

Medical

www.rarediseases.org 

National Organization of Rare Disorders

NORD maintains three searchable databases and an alphabetical index of rare diseases. Databases include: Rare Disease Database (read about more than 1,100 rare diseases), Organizational Database (find a support group or other source of help) and the Orphan Drug Designation Database (find out about new and experimental orphan products).

 

www.cdc.gov/ncbddd/dd/

Centers for Disease Control: National Center on Birth Defects and Developmental Disabilities

Site includes information about developmental disabilities and includes links. It also contains information about ADHD, Autism Spectrum Disorders, Hearing Loss, Cerebral Palsy, Kernicterus, Mental Retardation, and Vision Impairment. It also provides published articles on specific health topics and has updates on current hot topics in health.

 

www.marcus.org 

Marcus Institute
The Marcus Institute provides information, services and programs to people with developmental disabilities and their families, as well as those who live and work with them. Information about the following programs is provided: The Evaluation Clinic, Foster Care Assessment Center, Parent Education Workshops, Pediatric Feeding Disorders Program, Marcus Behavior Program, Georgia Evaluation Program, Neuropsychology Evaluation Clinic, Speech Language Pathology, and Mental Health Psychotherapy Clinic.
 

www.modimes.org/

March of Dimes

March of Dimes seeks to improve the health of babies by preventing birth defects and infant mortality Website includes online chats, newsletter, a health library with information on pregnancy and birth defects and more, and research information. Available in Spanish.

 

See also Medicaid/Deeming Waiver listings.

 

Medication Assistance
www.phrma.org/patients
Pharmaceutical Research and Manufacturers of America – 2002Directory of prescription drug patient assistance programs

Lists information about assistance programs sponsored by various drug companies.

www.medicineprogram.com
The Medicine Program

This site assists patients who may qualify to enroll in one or more of the many programs available that provide prescription medicine free-of-charge to individuals in need, regardless of age, if they meet the sponsor's criteria. A printable program application form is printable from site.

 

Mental Retardation/Mental Health
http://thearc.org/
The Arc

This site contains several articles about mental retardation and related topics. It helps you find an Arc program near you and shares about Arc public policy activities. It also provides publication and video resources and links to disability/mental retardation sites.

www.nami.org/
National Alliance for the Mentally Ill (NAMI)
Site includes fact sheets on specific mental illnesses, treatments and, illnesses that affect children and adolescents. Also includes information local affiliates and support groups, advocacy and public policy, recent news, and NAMI activities.

 

Parenting Children with Special Needs

www.parenttoparentofga.org/
Parent to Parent of Georgia

This site includes information about Parent to Parent Services which includes matching parents of children with similar diagnoses (an online form is available), a special needs database with over 4000 resources, support groups, parent message board, and printed disability literature (request form online). Additional information includes Health Insurance Options for Children, early intervention, conferences, workshops, special events, newsletter, and links to other disability-related organizations in Georgia. Site also sponsored an Online Chat with an Expert. Site is also available in Spanish.

 

www.peppac.org 

Parents Educating Parents and Professionals Inc.  (PEPPAC)

PEPPAC is the Parent Training and Information (PTI) Center for Georgia. Website includes a list of publications available, upcoming workshop schedule and links for special education resources, disability information, and Georgia special education rules.
 

www.eparent.com

Exceptional Parent Magazine

Exceptional Parent provides information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them. Website topics include: education, healthcare, life planning, mobility, sports, and technology.

 

http://www.our-kids.org/
Our-Kids - Devoted to Raising Special Kids with Special Needs

For parents, caregivers, and others who are raising or working with children with disabilities. Site contains message board and archives, chat room, and file archives with topics related to inspiration, coping, health information, and resources. This site also contains suggestions for homemade equipment and recommended books for parents and children.

 

http://specialchildren.about.com/parenting/specialchildren/mbody/htm
About.com: Parenting - Special Needs

Site provides articles for a variety of common disabilities and related topics. It also includes a discussion board and parenting tips.


www.specialchild.com/

Special Child: For Parents of Children with Special Needs
Website has a variety of information and opportunities for parent sharing. Categories include: Success Stories, Horror Stories, Family Issues, Disorder Zone (information on common disorders), Diagnosis Search, Tips for daily issues, parent matching, and a bulletin board.

 

www.childrenwithdisabilities.ncjrs.org

Children with Disabilities
The Children with Disabilities site offers families, service providers, and other interested individuals information about advocacy, education, employment, health, housing, recreation, technical assistance, and transportation covering a broad array of developmental, physical, and emotional disabilities. Resources are grouped into federal, state/local, national, grants and funding, and research and statistics.

 

www.icdl.com/htmls/parents.html

The Interdisciplinary Council on Developmental and Learning Disorders (ICDL) Parent Network

The Parent Steering Committee has prepared A Resource Guide - For Parents, By Parents . This guide was written to aid parents as they search for assistance for their special needs children. It is divided into seven sections: Overview, Therapeutic Approaches, Biomedical Interventions, Sensory Processing, Educational Interventions, Law and Advocacy and Glossary. In addition, the 2000 edition of For Parents By Parents features a new piece geared specifically to new parents: “A Parent's Road Map: dealing with communication, learning and social-relating disorders in young children.”

 

www.nfcacares.org

National Family Caregivers Association: Caregiving Resources

Site includes information about caregiving, caregiver survey reports, and common needs and concerns of family caregivers. Caregiving tips address doctor and caregiver communication and hospitalization of a loved one. Frequently asked questions include respite care resources, caregiver resources on the internet, financial help, and aging issues.

 

www.netnet.net/mums
MUMS: Mothers United for Moral Support

MUMS helps parents who have a child with any disorder, medical condition, mental or emotional disorder or rare diagnosis make connections with other parents whose children have the same or similar condition. It provides Parent to Parent Matching and offers an Data Base List of Disorders of its members. Site also provides links to organizations for general disorders.

 

www.focus-ga.org

Families of Children Under Stress (FOCUS)

FOCUS provides emotional, informational, and physical support to parents of children in the metro Atlanta area with disabilities or with ongoing medical needs. Site gives overview of services that include support/share groups, respite, hospital visits, workshops, camps, newsletters, bereavement support, and family activities. Site includes links to other organizations.

www.connectforkids.org

Connect for Kids: Guidance for Grown Ups
Website is for adults who are concerned about children. Links are available for the following topics: adoptions, arts, child abuse and neglect, child care and early learning, development, diversity and awareness, education, fathers, foster care, health, learning disabilities, parenting, parent involvement in education, and more! Also includes a search for groups that work in your state on behalf of children and families.

 

Resources

www.uap.uga.edu

Institute on Human Development and Disability/University of Georgia

IHDD maintains the Children with Special Needs Training and Technical Assistance Video Resource Library, which provides videotapes for training and technical assistance specific to young children with special needs, their families, and care givers. The collection is available for free loan to authorized individuals (including Parent Educators) responsible for training and technical assistance within their Health Districts. The collection may also be accessed for assistance in completing SCEIs continuing education requirements for Babies Can't Wait. To apply to become a member of the Resource Library, you may download an application form with the complete catalog from this site. The site also includes links to collaborative agencies and resource products for viewing and reading.

 

Service Dogs

http://www.k9connectioninc.com/service_dogs.htm

K9 Connection Inc.

Service Dogs assist people with disabilities in their daily life. They fulfill tasks that give disabled people more freedom, give companionship, offer therapy in many cases and accompany their partners to all places. K9 Connection trains dogs for mobility assistance, seizure alert, asthma alert and hearing dogs.

 

Siblings

www.chmc.org/departmt/sibsupp/
Children’s Hospital (Washington): Sibling Support Project

The Sibling Support Project encourages peer support and education opportunities for brothers and sisters of people with special health and developmental needs through Sibshops and sibling workshops provided through The Sibling Support Project. It helps you find a Sibshop in your area and includes online publications and related to young and adult siblings of individuals with disabilities. The site provides a list of resources including books, newsletters, videos, and movies related to brothers' and sisters' experiences and links suggested by adult brothers and sisters.

 

Social Security/SSI
www.ssa.gov/enews

The Social Security Electronic Newsletter
This free online newsletter provides news and information from Social Security. You can request  updates on Social Security Income (SSI), Disability, Laws & Regulations, and more.

 

Spanish
www.nclr.org/policy/socialsecurity/social_security.html

The National Council of La Raza: Social Security

Site includes an article about Social Security and information about Social Security reform and the Latino Community.

 

Special Education/Law/Advocacy

www.ed.gov/offices/OSERS/OSEP/
Office of Special Education Programs
OSEP administers the Individuals With Disabilities Education Act (IDEA). Site includes a copy of the Individual with Disabilities Education Act, numerous publications regarding children with disabilities and education, national studies, and a list of early state special education directors and early intervention coordinators, and more.

 

www.ed.gov/offices/OSERS/

Office of Special Education and Rehabilitation Services

OSERS provides a wide array of support to parents and individuals, school districts and states in three main areas: special education, vocational rehabilitation and research. Site includes education resources, financial aid information, grants and contracts, and links to online educational resources.

 

www.ideapractices.org/docs/ideadepot/userguide.htm
IDEA (Individuals with Disabilities Education Act) Practices

Site provides Laws & Regulations, Professional Development Resources, and an IDEA Practices section. It also has IDEA news briefs, special education questions and answers, and IDEA links.

 

www.thegao.org
Georgia Advocacy Office (GAO)

GAO works with and for oppressed and vulnerable individuals in Georgia who are labeled as disabled or mentally ill to secure their protection and advocacy. Website includes information about GAO’s advocacy programs for people with developmental disabilities, individuals with mental illness, assistive technology, individual rights, and beneficiaries of social security. Site also includes the online publication of Advocating for your Child’s Education (English and Spanish) and a newsletter archive. Lists advocacy website concerning students with disabilities.

 

www.ga-ddcouncil.org/

Governor's Council on Developmental Disabilities
This site contains information about the Governor’s Council on Developmental Disabilities and its programs. Also contains information on current public policy issues and advocacy links to government sites, disability resource sites, non-profits, and listserv groups. A question and answer site is also available. Bulletin boards are included for resources and meeting notices.

 

www.uap.uga.edu

Institute on Human Development and Disability/University of Georgia.

IHDD works with others to create opportunities that will improve the quality of life for people with disabilities and their families. The IHDD advances the understanding of the abilities of all people through education, research, and public service.


 

www.partnersinpolicymaking.com/

Partners in Policymaking

Partners in Policymaking is a leadership training program for adults with developmental disabilities and parents of young children with disabilities. Site gives information about program and a list of resources.

 

www.glrs.org/
Georgia Learning Resource System (GLRS)
Resources on this site include a summer camp directory, transition directory and guide to agencies in Metro Atlanta that provide or facilitate transition services, Internet Resources for Special Educators, and the Parent’s Right Handbook for Special Education. Includes links to other educational and disability-related websites. Site contains a list of GLRS materials, GLRS newsletter, and list of local GLRS centers.


www.doe.K12.ga.us/sla/exceptional/exceptional.html

Georgia Department of Education: Special Education – Exceptional Students
Site has information on Special Education, Individualized Education Programs (IEPS), Assistive Technology, state and federal regulations, state board of education rules, special education forms, and other services and resources. Site also has parent/student resources, including public education report cards, school safety program, pre-k program and more.

www.law.cornell.edu/topics/education.html
Cornell Legal Information Institute: Education Law – An Overview

Site gives an overview of education laws. It includes links to federal resources, state materials, and other references such as the U.S. Department of Education.

www.law.cornell.edu/topics/state_statutes.html#education
Cornell Legal Information Institute: State Statutes on the Internet

Site allows you to search education laws in Georgia using keywords/phrases or code numbers.

www.edlaw.net/frames.html
EDLAW Center

Site provides text of special education laws. The EDLAW Electronic Library contains texts of statutes, regulations, administrative interpretations, and judicial decisions. Online publications include EDLAW Briefing Papers, Education Records, and Transporting Students with Disabilities.

 

www.wrightslaw.com/
Wrightslaw

Site has articles about advocacy, special education, and legal issues. Resources include books, newsletters, and websites. The Advocacy Libraries and Law Libraries has resources about special education law and advocacy.

 

www.amicusforchildren.org/
Amicus for Children, Inc

This non-profit organization provides free services to caretakers of special needs children to help them be their children's "first and best advocate." It includes a listing of recent court decisions that affect children with special needs. It also has law-related links, Seven Steps to Getting Free & Appropriate Education, information on Asperger’s Syndrome, and a service request form.

www.empowermentzone.com/

Empowerment Zone
Site offers information, ideas, and software related to empowerment, or “helping individuals and communities achieve self actualization and full citizenship.” Topics include accessibility, funding assistive technology, independent living, education, parenting, Social Security, and much more


Speech and Language
www.gsha.org 

Georgia Speech-Language-Hearing Association (GSHA)

Website contains a facility directory that is useful to search for GSHA affiliated speech services by county. It also includes a lengthy list of speech-related websites.

 

www.apraxia-kids.org/
Apraxia Kids

Site provides comprehensive information about childhood apraxia of speech. The HELP! feature gives parents of newly diagnosed children quick information on apraxia, diagnosis, education, funding, prognosis, suggestions, and support. Site helps you connect with others through listservs, message boards, and support groups. Articles, research, a variety of resources, and frequently asked questions are also included.

www.groups.yahoo.com/group/atlantaapraxia

Apraxia Listserv
Listserv is comprised of a small group of parents in Atlanta and surrounding counties who have children with a form of apraxia. The Listserv seeks to offer support and knowledge.

 

www.nlda.org

Nonverbal Learning Disorders Association

Site includes information about Nonverbal Learning Disorders (NLD) and diagnosing them. It also lists positive interventions for NLD and provides links to related websites.

 

www.wordfinding.com

Word Finding Difficulties

Website provides information about Word Finding and its difficulties. Topics in this website include definition, characteristics, assessment, intervention, and IEP objectives. Student groups who might have word finding difficulties are highlighted.   References and/or materials helpful in understanding word finding are also presented.  At the virtual help section viewers are invited to ask questions about a learner's word finding difficulties or about their own word finding difficulties.  A final section lists other internet resources that may be useful to individuals interested in Word Finding.

  

Spina Bifida

www.spinabifidaofgeorgia.org 

Spinal Bifida Association of Georgia

Site includes information about Association services, a fact sheet about Spina Bifida, and recommended Spina Bifida links. Site also has a newsletter, information on folic acid, and a chat room and listserv for connecting with others.


Transportation/
Traveling and Disabilities

www.projectaction.org/paweb/index.htm#welcome

Accessible Traveler's Database
Site provides a database of accessible services. They include Public Transit Operators, Accessible Van Rental Companies, Private Bus/Tour Companies with Accessible Vehicles, Accessible Taxis, Airport Transportation, Hotel-Motel Shuttles and National 800 Numbers to assist you in making your travel plans. Toll-free numbers are included for domestic airlines, also. Search by city and state.

 

www.geocities.com/Heartland/Village/9021/travel.html

KidPower: Accessible Travel

Site includes information about travel and personal experiences and tips from families who have traveled to Disney World and other popular vacation resorts.

 

www.blvd.com

The Boulevard. Disability Resource Center
A Directory of Products and Services for the Physically Challenged, Elderly, Caregivers and Healthcare Professionals with links to accessible vehicles, travel and recreation, Disabled Dealer Magazine of GA and more.

 

http://rrvan.home.mindspring.com

R & R VanLifts Sales and Service, Inc.

R&R Van Lifts, Inc. offers a variety of vehicle conversions to solve the personal transportation needs of physically challenged individuals. Located in Conyers, GA

 

Visual Impairments

www.gapines.net  

Georgia Parent Infant Network for Educational Services (PINES)

Georgia PINES is a statewide early intervention program, begun in 1980, for families of children birth to five years of age with a diagnosed hearing impairment and/or a visual impairment. Website includes program information, parent information, and links to online resources. Referrals can also be made on the website.

 

www.cviatlanta.org/index.html

Babies Early Growth Intervention Network (BEGIN) Center for the Visually Impaired
Website
provides information about the services for newborn to early school-age children with severe visual impairments and their families that BEGIN provides. It also includes Atlanta resources for persons who are visually impaired, quarterly newsletter, and a calendar of events and activities associated with BEGIN.

 

www.afb.org 

American Foundation for the Blind

Site includes information about blindness and low vision and related issues such as education, Braille, and employment. Site also has a directory of services for visually impaired persons in the US and Canada, message boards, job listings, and an online bookstore.

 

 

- Compiled by Project SCEIs; revised 5/03