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Position Statement on Access to Communication Services and Supports:
Concerns Regarding the Application of Restrictive "Eligibility"
Policies
Eligibility policies and practices often preclude
children and adults with severe disabilities from accessing needed
communication services and supports. Communication services and
supports may include instruction of individuals and their communication
partners, assistive technology, and environmental modifications,
and may be delivered through a variety of service delivery models.
The expected outcome of such services and supports is to increase
or to prevent decline in the individual's meaningful participation
in daily activities. Categorical denial of communication services
and supports without consideration of a person's unique communication
needs may violate federal statute, and may also violate state law,
regulation and policy.
POSITION
It is the position of the National Joint Committee for the Communication
Needs of Persons with Severe Disabilities that eligibility for communication
services and supports should be based on individual communication
needs. Communication services and supports should be evaluated,
planned and provided by an interdisciplinary team with expertise
in communication and language form, content, and function, as well
as in augmentative and alternative communication (AAC). Decisions
regarding team composition, types, amounts, and duration of services
provided, intervention setting, and service delivery models should
be based on the individual's communication needs and preferences.
Eligibility determinations based on a priori criteria violate recommended
practice principles by precluding consideration of individual needs.
These a priori criteria include, but are not limited to: (a) discrepancies
between cognitive and communication functioning; (b) chronological
age; (c) diagnosis; (d) absence of cognitive or other skills purported
to be prerequisites; (e) failure to benefit from previous communication
services and supports; (f) restrictive interpretations of educational,
vocational, and/or medical necessity; (g) lack of appropriately
trained personnel; and (h) lack of adequate funds or other resources.
Supporting Documentation
The purpose of this report is to provide information
supporting the National Joint Committee's position on Access to
Communication Services and Supports: Concerns Regarding the Application
of Restrictive "Eligibility" Policies. This report reflects
an historical and interdisciplinary perspective on the issues presented.
The organization of this report follows the order of statements
in the Position Statement.
Eligibility policies and practices often preclude
children and adults with severe disabilities from accessing needed
communication services and supports.
In recent years, many state and local education
agencies have instituted more restrictive eligibility criteria for
speech-language services (ASHA, 2000). However, narrowing eligibility
solely on the basis of categorical factors, such as diagnosis or
mental age, violates the Individuals with Disabilities Education
Act (IDEA) Amendments of 1997, which explicitly require that services
be based on individual student needs that affect participation and
progress in the general curriculum and extracurricular and other
non-academic activities. Further, these recent amendments require
that particular emphasis be given to the special factors of communication
needs, assistive technology devices and services, and positive behavioral
interventions.
Similarly, for many years adults with severe communication
disabilities were denied access to communication services and supports
by state Medicaid programs solely on the basis of their age and
the nature of their disability. Challenges to these denials have
resulted in improvements in Medicaid funding for communication services
and supports in many states. Recent revisions of Medicare policy
also recognize the legitimacy and therapeutic appropriateness of
AAC interventions. Once denied by Medicare as "convenience
items," speech-generating devices (AAC devices) are now a covered
benefit.
Despite these recent policy revisions and clarifications,
there is considerable anecdotal evidence that local school districts
and service agencies continue to base access to communication services
on a priori judgments concerning the potential value or benefits
of services provided to individuals with severe disabilities (e.g.,
McWilliam, Young, & Harville, 1996; Summers, 1999).
Communication services and supports may be
delivered through a variety of service delivery models, and may
include instruction of individuals and their communication partners,
assistive technology, and environmental
modifications.
Justification for denial of communication services
and supports for persons with severe disabilities is often based
erroneously on a narrow conceptualization that "communication"
pertains only to the use of standard linguistic structures and traditional
output modes (i.e., speech and writing) (National Joint Committee……,
1992). In actuality, "communication may be intentional or unintentional,
may involve conventional or unconventional signals, may take linguistic
or nonlinguistic forms, and may occur through spoken or other modes"
(National Joint Committee……, 1992, p. 3). Therefore,
communication intervention needs to consider multiple forms and
modes based on a person's communication needs and preferences. Furthermore,
because communication does not occur in a vacuum, communication
intervention "…requires careful attention to and management
of the physical and interpersonal environments in which such persons
live, play, and work" (National Joint Committee……,
1992, p. 3). This means that an individual's communication partners
need to be directly involved in order for communication services
and supports to be effective. To enable an individual's meaningful
participation in daily activities, communication services and supports
must be provided using the model(s) of service delivery most suitable
for the individual (Cirrin & Penner, 1995; Paul-Brown &
Caperton, 2001; McWilliam, 1996). Family members, friends and peers,
teachers, and other service-providers must feel comfortable and
be knowledgeable of the ways an individual expresses him/herself
(Beukelman & Mirenda, 1998; Downing, 1999; National Joint Committee……,
1992).
The expected outcome of such services and
supports is an increase in the individual's meaningful participation
in daily activities.
The Communication Bill of Rights (National Joint
Committee…, 1992) states that all individuals have a right
to communicate during their daily activities and across the lifespan.
Individuals with severe disabilities express themselves in many
ways, including speech, gestures, facial expressions, vocalizations,
and body movements. There are also a number of symbolic, but non-spoken,
modes of communication that may be used by individuals with cognitive,
sensory, and/or motor disabilities. These modes, which include manual
signs, picture communication systems, tangible symbol systems, and
orthographic systems, may be produced with or without the aid of
a speech-output communication device. Thus, the expected outcome
of communication services and supports for individuals with severe
disabilities should be functional and should reflect the daily needs
and preferences of an individual. Outcomes should not be defined
exclusively in relation to the attainment of specific spoken language
goals. Rather, outcomes should be considered relative to the effectiveness
of communication-in the form and mode most appropriate for that
individual (which is not necessarily spoken language)-in enabling
the individual to participate more fully in the various settings
and with the multiple communication partners encountered in one's
daily life., In addition, reimbursement for services may derive
from more than one funding source. Nevertheless, it would be contrary
to current standards of professional practice, policy, and published
literature to allow the setting, communication partner, or funding
stream to dictate what constitutes an individual's "need"
to communicate. Rather, effective communication enables an individual
to participate in all facets of daily activity, and may impact-among
other things- family and peer interaction, learning, self-care,
employment, and community involvement. Effective communication has
been demonstrated to enhance self-determination (Wehmeyer &
Kelchner, 1995), personal perceptions of outcome (Wehmeyer, 1994),
quality of life (Schalock, 1994), and social interactions (Kennedy,
Horner, & Newton, 1990). Beneficial outcomes such as these result
from services and supports provided directly to the individual as
well as those provided to the individual's communication partners.
Categorical denial of communication services
and supports without consideration of person's unique communication
needs may violate federal statute, and may also violate state law,
regulation, and policy.
Very broad protections are provided under federal
law for individuals who are eligible for special education services,
vocational rehabilitation services, Medicaid, and/or Medicare. In
all instances, availability of services-including communication
services and supports-must be determined based on the individual's
needs, and may not be denied solely on the basis of the nature or
extent of the individual's disability (34 CFR 300.300).
State laws, regulations, and policies may offer
more expansive benefits than those afforded to individuals under
federal law, but may not reduce them below the level guaranteed
by federal law.
*******
It is the position of the National Joint Committee for the
Communication Needs of Persons with Severe Disabilities that eligibility
for communication services and supports should be based on individual
communication needs.
Communication services and supports should be evaluated, planned
and provided by an interdisciplinary team with expertise in communication
and language form, content, and function, as well as in augmentative
and alternative communication (AAC).
The knowledge, experience, and skills of the individual,
his/her family members, and several professionals are critical to
the design and implementation of appropriate communication supports
and services for the individual with severe disabilities. Teams
must include at least one individual with expertise in language
understanding and use, communicative disorders, and AAC strategies..
Further, such interdisciplinary teams may require the participation
of an occupational therapist and a physical therapist when issues
of positioning, seating, and/or motor skills impact an individual's
ability to communicate effectively (Angelo, 1997). The specific
nature of the individual's physical,sensory, cognitive, and communication
needs will determine which other professionals need to be involved
in the planning process. However, the mere involvement of professionals
from a variety of disciplines, such as audiology, general and special
education, occupational therapy, physical therapy, and speech-language
pathology, does not insure their collaboration in providing relevant
and necessary support services. The provision of communication services
and supports is likely to be compromised if input from any single
professional is not adequately synthesized and coordinated with
input from the family, individual, and other professionals (Giangreco,
Dennis, Edelman, & Cloninger, 1994; Giangreco, Edelman, &
Dennis, 1991; McCarthy et al., 1998; National Joint Committee…,
1992).
Decisions regarding team composition, types,
amounts, and duration of services provided, intervention setting,
and service delivery models should be based on the individual's
communication needs and preferences.
Current recommended practice, based on recent
research, supports the delivery of communication services in multiple
settings, corresponding to the many actual environments in which
the individual's communication must be functional (Mirenda, 1997;
Wilcox & Shannon, 1996). For example, a special education student's
communication needs do not depend on school attendance, but exist
through the course of the student's day and year. In fact, time
in school represents less than 20% of a typical student's waking
hours during the course of a year. Thus, the communication services
plan for that student might include objectives and criteria specific
to a variety of important non-school settings and communication
partners. Similarly, for an adult receiving Medicare funded communication
services, the service delivery model and contexts should reflect
the aspects of that individual's daily life in which improved communication
may enhance participation-and not just the medical or clinical setting.
The remaining sections of this report address
the issues associated with each of the eight a priori criteria-identified
in the Committee's Position Statement-invoked as a justification
for denial of services and supports. These factors are addressed
in sequence (a through h) with specific references to the empirical
evidence, practice guidelines, and/or legal ruling or statute that
precludes use of that factor as an a priori criterion in eligibility
determinations.
Eligibility determinations based on a priori
criteria violate recommended practice principles by precluding consideration
of individual needs. These a priori criteria include, but are not
limited to: (a) discrepancies between cognitive and communicative
functioning;…
Individuals with severe disabilities are sometimes
denied access to communication services and supports because their
language skills are determined to be commensurate with their cognitive
skills. This model, known as cognitive referencing, suggests that
a language delay warrants intervention only when language skill
development lags behind cognitive skill development (Miller &
Chapman, 1980; Shane & Bashir, 1980). This notion has been refuted
by research demonstrating that the relationship between language
and cognition is neither straightforward nor static (Casby, 1992;
Cole & Fey, 1996; Kangas & Lloyd, 1988; Notari, Cole, &
Mills, 1992; Rice & Kemper, 1984), that tests purporting to
assess cognitive and linguistic performance often measure the same
fundamental skills (ASHA, 1999, 2000; Secord, 1992), that assessments
typically used for deriving cognitive/language profiles yield sizable
variation in discrepancy determinations (Cole, Dale, & Mills,
1992), and that children with disabilities whose cognitive and language
skills were commensurate nonetheless benefit from language intervention
(Cole, Dale & Mills, 1990). Given the lack of substantiation
for cognitive referencing as a prognostic indicator, it should not
be used as the basis for restricting access to communication services
and supports.
Eligibility determinations based on a priori
criteria violate recommended practice principles by precluding consideration
of individual needs. These a priori criteria include, but are not
limited to: (a) discrepancies between cognitive and communicative
functioning; (b) chronological age;…
Chronological age is often mentioned as an argument
against the provision of communication services to individuals with
severe disabilities, either because they are "too young"
or "too old" to benefit from such services. Current research
clearly documents the efficacy of communication services and supports
provided to infants, toddlers, and preschoolers with a variety of
severe disabilities (Bondy & Frost, 1998; Cress, in press; Romski,
Sevcik, & Forrest, 2001; Rowland & Schweigert, 2000). As
children transition from preschool through primary and secondary
educational levels, they continue to develop language and communication
skills (Chapman, 1997) and thus benefit from communication services
and supports throughout the school years (Hamilton & Snell,
1993; Mirenda, Wilk, & Carson, 2000; Romski & Sevcik, 1996
One common argument against a particular type of communication service
for toddlers and preschool aged children is that such children are
"too young" to introduce the use of an augmentative /
alternative communication (AAC) mode. Specifically, some parents
and professionals believe that the introduction of an AAC mode at
an early age will preclude the child from ever developing speech
as his/her primary mode of communication. In fact, however, numerous
studies have demonstrated that the use of AAC does not interfere
with speech development (Romski, Sevcik, & Hyatt, in press)
and actually has been shown to support such development (Millar,
Light, & Schlosser, 2002 [for a review of research demonstrating
this effect]; Romski & Sevcik, 1996; Romski, Sevcik, & Pate,
1988).Nor do communication needs disappear when school services
end; they remain or expand as children transition into adulthood
and as young adults grow older. Communication permeates every aspect
and cycle of life, influencing one's self-determination and life
quality. Likewise, a number of studies have shown that individuals
with severe disabilities continue to develop communication and language
skills well into their adult years (McLean, Brady, & McLean,
1996); and that adolescents and adults with a variety of severe
disabilities make measurable gains when provided with appropriate
communication services (Iacono, Carter, & Hook, 1998; McLean
& McLean, 1993; Romski, Sevcik, & Pate, 1988; Sack, McLean,
McLean, & Spradlin, 1992). Communication is essential across
the lifespan, thus it is inappropriate to restrict access to communication
services and supports on the basis of chronological age.
Eligibility determinations based on a priori
criteria violate recommended practice principles by precluding consideration
of individual needs. These a priori criteria include, but are not
limited to: (a) discrepancies between cognitive and communicative
functioning; (b) chronological age; (c) diagnosis;…
The term "severe disabilities" is used
to refer to numerous diagnostic labels that result in major communication,
cognitive, motor, and/or sensory impairments. Furthermore, significant
limitations in communication often are secondary to a wide range
of disability conditions or etiologies (e.g., chromosomal, genetic,
metabolic, environmental, neurological; Batshaw, 1997). Contemporary
research studies have demonstrated that, with appropriate instruction
and support, individuals with severe disabilities can learn to communicate
effectively regardless of the nature and/or cause of their underlying
impairments. For example, research has demonstrated the benefits
of appropriate instruction and support for individuals with autism
(Hamilton & Snell, 1993; Mirenda et al., 2000; Wetherby, Prizant,
& Schuler, 2000); individuals with severe cognitive and/or physical
disabilities (McCathern, 2000; Romski & Sevcik, 1996; Rowland
& Schweigert, 2000; Sack et al., 1992; Wacker, Wiggins, Fowler,
& Berg, 1988); and individuals who are deaf-blind (Rowland &
Schweigert, 1989, 1993). A diagnostic label, in and of itself, reveals
very little about an individual's communicative functioning, and
thus is insufficient evidence on which to base a decision regarding
access to communication services and supports.
Eligibility determinations based on a priori
criteria violate recommended practice principles by precluding consideration
of individual needs. These a priori criteria include, but are not
limited to: (a) discrepancies between cognitive and communicative
functioning; (b) chronological age; (c) diagnosis; (d) absence of
cognitive or other skills purported to be prerequisites;…
Some practitioners and policy setting agencies
have interpreted research findings as suggesting that certain skill
requirements or performance criteria are necessary for an individual
to benefit from communication services or supports (Miller &
Chapman, 1980; Shane & Bashir, 1980). For example, research
linking specific sensori-motor skills to language acquisition in
typically-developing children was interpreted as suggesting that
such skills are prerequisites for speech and language development
in children with severe disabilities. Thus, students not demonstrating
these skills were considered ineligible for direct communication
services. Recent research has documented that children and adults
who do not demonstrate these supposed prerequisites can benefit
from appropriate communication services and supports (Brady &
McLean, 2000; Kangas & Lloyd, 1988; McCathren, 2000; Reichle
& Yoder, 1985; Romski, & Sevcik, 1996). Thus, access to
communication services and supports should not be predicated on
the demonstration of skills once considered to be prerequisites.
Eligibility determinations based on a priori
criteria violate recommended practice principles by precluding consideration
of individual needs. These a priori criteria include, but are not
limited to: (a) discrepancies between cognitive and communicative
functioning; (b) chronological age; (c) diagnosis; (d) absence of
cognitive or other skills purported to be prerequisites; (e) failure
to benefit from previous communication services and supports;…
Another argument that has been used to exclude
individuals from communication services is that past services provided
to the individual have not been successful in promoting improved
communication skills. In such cases the tendency is often to attribute
this failure to the individual's purported "lack of potential
to benefit". However, there are so many factors that may contribute
to an individual's perceived failure to benefit from previous communication
services and supports that failure cannot be attributed with certainty
to the individual alone. These factors may include the selection
of inappropriate intervention goals, insufficient instructional
time, unsuitable or outdated intervention methods or materials,
a failure to collect and analyze meaningful performance data, a
failure to incorporate suitable assistive technology, a failure
to recognize or address the needs and concerns of culturally / linguistically
diverse families, as these might affect participation in communication
services; and/or the use of irrelevant or erroneous criteria to
evaluate intervention. An individual's perceived failure to benefit
also may relate to health, environmental, or other factors that
were not adequately considered in previous communication services
and support. Thus, when considering potential services for an individual
who reportedly has failed to benefit from past services, it is crucial
that the team carefully review and analyze all aspects of past services
in order to identify specific modification(s) that have the greatest
probability of yielding improved outcomes for the individual, and
then implement those improvements with ongoing monitoring of progress
(McCarthy et al., 1998; Wilcox & Shannon, 1996). Access to communication
services and supports should not be denied merely because an individual
failed to progress as a function of prior therapy; rather, previous
experiences should be examined in order to determine ways in which
communication services and supports could be better tailored to
meet the individual's unique communication needs.
Eligibility determinations based on a priori
criteria violate recommended practice principles by precluding consideration
of individual needs. These a priori criteria include, but are not
limited to: (a) discrepancies between cognitive and communicative
functioning; (b) chronological age; (c) diagnosis; (d) absence of
cognitive or other skills purported to be prerequisites; (e) failure
to benefit from previous communication services and supports; (f)
restrictive interpretations of educational, vocational, and/or medical
necessity…
Funders of communication services and supports,
such as school districts, vocational rehabilitation agencies, and
public or private insurers, employ criteria to determine whether
they are legally obligated to pay for a needed service, device,
or other support. A funder may impose inappropriately restrictive
interpretations of the relevant laws or policy as justification
for denial of services. The only protection against this inappropriate
practice is for the individual and/or the advocate to have specific
knowledge of the statute or policy and any related case law or policy
determinations arising from them.
For example, if a student receives special education
services, a communication service/support must be provided if it
enables the youngster to receive a "free, appropriate public
education" in the least restrictive environment." It is
very difficult to deny the critical importance of communication
in the educational setting; thus it should be very difficult for
a school to deny access to communication services and supports for
children with significant communication limitations. The services
and placement needed by each child with a disability must be based
on the student's unique needs and not on the student's disability
(34 CFR Part 300.300). The IDEA also explicitly states that the
need for assistive technology devices and services must be considered
for all students when developing the Individualized Education Program
(20 U.S.C. §1414 (d)(3)(B)(v); 34 CFR 300.3346(a)(2)(v)).
Communication limitations are typically secondary
to medical problems that have resulted in a malformation or malfunction
of the brain or other physiological components in the communication
chain (Crystal & Varley, 1998). Thus, treatment for the sequelae
of such medical problems is considered medically necessary. Not
all children have health insurance coverage (private insurance or
public insurance such as Medicaid) for reimbursement of treatment
costs, so at times schools may have to provide devices if they are
determined to be educationally necessary in addition to being needed
to treat a medical condition or its consequences. Federal law, however,
states clearly that Medicaid has primary responsibility when some
overlapping health and educational service need is identified (42
USC 1396b(c)).
Adults may qualify for communication services
and supports from a variety of sources, including private insurance,
Medicaid, Vocational Rehabilitation, and Medicare. Depending on
the terms of the coverage, individuals may be able to access communication
services and/or supports as Durable Medical Equipment (DME), Prosthetic
Devices, and/or Speech-language Pathology Services. Although Medicaid
coverage for adults varies from state to state, all states include
DME as a covered benefit. Forty-eight state Medicaid programs provide
reimbursement for prosthetic devices, and about two-thirds of the
states cover speech-language pathology services. Medicare covers
communication services and supports as Speech Pathology Services
and Speech Generating Devices (Medicare Coverage Issues Manual,
§60-23; DMERC A, B, C, D, Regional Medical Review Policy on
Speech Generating Devices).
Vocational Rehabilitation funds may be accessed
for purchase of communication services and supports if the consumer's
use of them is linked to vocational outcomes. In some states, Independent
Living funds also may be used to pay for services and supports that
will improve the individual's "ability to function, continue
functioning, or move towards functioning independently in the family
or community or to continue in employment" (Section 7(15)(B)
of the Rehabilitation Act).
To qualify for services under Vocational Rehabilitation,
an individual must have a disability that presents a barrier to
employment and must be willing to pursue vocational goals and employment
(Rehabilitation Act of 1973, as amended, Title 1, Sections 100-111).
The Rehabilitation Act specifies that the burden of evidence is
not on the client/advocate to demonstrate "employability"
(a criterion for access to most vocational rehabilitation services),
but rather on the Vocational Rehabilitation agency to demonstrate
that the individual is not employable, even with appropriate accommodations,
if the agency wishes to deny access to services.
Both private insurance and public insurance programs
(Medicaid and Medicare) require the beneficiary to demonstrate how
the communication services and supports are medically necessary.
Such justification should document that communication services and
supports are needed to accommodate the loss of function of a body
part, typically as the result of a physical defect or medical condition
(e.g., severe apraxia secondary to brain injury, unintelligible
articulation as a function of cerebral palsy, severe communication
disability secondary to mental retardation of unknown etiology).
Medical care is provided to restore health following identification
of impairment. Thus, the need for treatment is not based on how
the person will then use his/her functioning after it is restored,
and certainly is not appropriately measured by whether those uses
involve other funding programs, such as the school or Vocational
Rehabilitation.
Eligibility determinations based on a priori
criteria violate recommended practice principles by precluding consideration
of individual needs. These a priori criteria include, but are not
limited to: (a) discrepancies between cognitive and communicative
functioning; (b) chronological age; (c) diagnosis; (d) absence of
cognitive or other skills purported to be prerequisites; (e) failure
to benefit from previous communication services and supports; (f)
restrictive interpretations of educational, vocational, and/or medical
necessity; (g) lack of appropriately trained personnel;…
Surveys repeatedly show that even experienced
professionals feel that they lack the skills required to provide
communication services and supports to individuals with severe disabilities
(ASHA, 2000a; Ogletree, Sportsman, VanGiesen, & Siegel, 2000;
Simpson, Beukelman, & Bird, 1998; King, 1998). A fundamental
tenet of IDEA and professional associations is the need to have
adequate training to provide appropriate communication services
and supports (e.g., AAMR, 2001; AOTA, 2000; APTA, 1981, 2001; ASHA,
1994; CEC, 1997; TASH, 1999). Professionals can only serve persons
with severe disabilities if they have knowledge and skills specific
to this population (McCarthy et al., 1998). Holding professional
licensure or certification does not ensure expertise in meeting
the communication needs of persons with severe disabilities. It
is the responsibility of the professionals on the team to have the
knowledge and skills necessary to serve this population. If the
team lacks adequate expertise, including competence relative to
cultural and linguistic diversity (Huer, Parette, & Saenz, 2001;
Kemp & Parette, 2001; Saenz, Huer, Doan, Heise, & Fulford,
2001), alternative sources of expertise must be secured, or sufficient
training for the existing team must be obtained. To do otherwise,
individual team members would violate professional codes of ethical
conduct. However, lack of trained personnel is not justification
for denying services or providing inadequate services and supports.
Rather, if sufficient numbers of qualified personnel are unavailable,
the agency has an obligation to secure appropriate training for
existing staff or to secure additional staff with the needed expertise
(Timothy W. vs. Rochester, NH School District, 1989). The mere lack
of trained personnel cannot be used as a reason to deny access to
communication services and supports; rather, if the individual's
communication needs indicate that such supports are warranted, the
responsible provider is obliged to secure personnel with sufficient
knowledge and skills to provide quality services.
Eligibility determinations based on a priori
criteria violate recommended practice principles by precluding consideration
of individual needs. These a priori criteria include, but are not
limited to: (a) discrepancies between cognitive and communicative
functioning; (b) chronological age; (c) diagnosis; (d) absence of
cognitive or other skills purported to be prerequisites; (e) failure
to benefit from previous communication services and supports; (f)
restrictive interpretations of educational, vocational, and/or medical
necessity; (g) lack of appropriately trained personnel; and (h)
lack of adequate funds or other resources.
The provision of appropriate communication services
and supports for individuals with severe disabilities may require
resources beyond those currently available or allocated within a
local education agency or other service provider agency. For example,
a community service agency may voice concern that the communication
services recommended for one client with severe disabilities would
present an impossible drain on that agency's budget. Similarly,
a rural school district may indicate that it cannot provide appropriate
communication services for a student with severe disabilities because
it has not been able to hire one or more needed professionals for
a student's team (e.g., an occupational therapist, physical therapist,
or speech language pathologist). While each of these cases may represent
real challenges for the agencies involved, such perceived or real
barriers do not constitute legal grounds for denial of services
when they are mandated by federal statute.
It is important to note that the lack of adequate resources to provide
appropriate communication supports and services may be more of a
perceived barrier than an actual one. For example, one recent study
dispelled the perception that funding was the primary barrier to
provision of AAC devices and services by demonstrating that such
funding was available through a variety of public and private benefits
programs (Mineo Mollica, 1999). Likewise, an agency may not have
the necessary expertise within its own professional staff to meet
the needs of a particular client, but may be able to access the
needed knowledge and skills through interagency agreements and/or
contractual services. Thus, what appears to be a lack of financial
or personnel resources may actually be a lack of information about
how and where to access the needed resources to provide appropriate
communication services and supports. It is illegal under Medicaid
law and under the Individuals with Disabilities Education Act to
subject individuals to undue delays in the provision of services
to which they are entitled. Also, there is nothing in either program
that permits restrictions in services due to budget limitations.
Rather, both Medicaid law and IDEA state that identified needs have
to be met.
Summary
This report has provided a brief summary of the legal and empirical
bases for the position statement adopted by the National Joint Committee
on the Communication Needs of Persons with Severe Disabilities set
forth on page 1 of this document. This position states that decisions
about eligibility for communication services and supports for an
individual with severe disabilities, as well as decisions about
the nature and extent of those services, must be based upon consideration
of an individual's communication abilities and needs, and not upon
any other a priori criteria.
EndNotes
Persons with severe disabilities
include "persons with severe to profound mental retardation,
autism, and other disorders that result in severe socio-communicative
and cognitive communicative impairments" (National Joint Committee,
1992, p.2)
Service delivery models include both direct service and
'indirect', consultative/collaborative service models, and any combination
of these models identified as most appropriate to meet the individual's
needs.
a priori is defined as "made before or without examination
and not supported by factual study" (American Heritage Dictionary
of the English Language, 1981).
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